WTH
If I had known that being sick was so revolting, I wouldn't have gotten sick in the first place.
I accept that I have to be aware. What this amounts to is a life that is surrounded by rules--rules that I am not good at following. Count sodium, count carbs, count fat grams; low sugar, low cholesterol, no caffeine, no this, no that--till every moment is consumed with the buying of food, the preparation of food, the examination of food labels, eating what has become tasteless even with countless herbs.
Then there is the life-sustaining medication I must take, not inexpensive generics. Oh, no! The last one caused awful side effects, so my good cardio man changed it--to a drug that is THREE HUNDRED FORTY-ONE DOLLARS A MONTH. What the hell.
There's the leg that is still weak, the hair that is recuperating from anesthesia, the lifting restrictions and the ceaseless paperwork and bills. Add to this the heart that is still not functioning normally., which makes me tired long before I want to sleep.
I found out that I had been losing weight so easily since January because A. the diabetes was out of control, and B. because my heart was, too. So, I am back on track and so are the pounds. Excuse me for living.
I've been really ill only a handful of times. I sympathize with you who have cancer or back surgeries or whatever. Here I am grousing about inconvenience.
What is hard for some people to understand is that I don't look sick, I don't act sick, I am in denial of being sick. Just because one doesn't appear sick doesn't mean one is not. I know this is life-threatening. As I get older I see my friends who are also threatened. Most of them don't look sick either.
I am learning tolerance, but not patience. I am tired of being told "it's all good" and "just sign your life away here" and "more blood work, please". I am tired of being asked my birth date and social security number. I am tired of being told "NO". I am sick of being sick.
There are days when I pass it off and other days when I cry in frustration. Some days I feel really good, like I could lick the world. Other days I'm so sleepy I could spend all day lounging. The "highs" are very high, the "lows" significant. There are days that I almost wish I had died and other days that I am so grateful to be alive.
Today I am mad. I am mad at the doctor and mad at the pharmacy and mad at the state and mad at the caseworker who is doing his job. I'm mad at the mailman for bringing me more bills. I'm mad because I know I am not ready to do all those "normal" things that the doctor says I could do.
Instead of feeling the gratitude of living, today I am angry at everybody and everything. What the hell.
Tomorrow will be better. I promise.